Clinical Research Pavilion

Patients, caregivers, and healthy controls will once again have the opportunity to participate in research at UMDF’s Clinical Research Pavilion at Mitochondrial Medicine Conference this year, June 17-20, 2026, in Orlando, FL.

While the full lineup of studies is still under development, here’s an early look:

• Motor Skills Assessment with The Children’s Hospital of Philadelphia
  This study is open to patients and caregivers. If you participated last year, you are encouraged to participate again this year.

• MSeqDR (Mitochondrial Disease Sequence Data Resource) Enrollment
  Learn more on how you can share your genomic data with researchers all over the world. If you are NOT attending the conference, and are interested in this opportunity, please email registry@umdf.org or reach out to CHOP at MSeqDR@chop.edu.

To kickstart your pavilion inclusion, join mitoSHARE today.

Please reach out to registry@umdf.org to learn more about the studies, and to hold your spot for 2026.