As part of UMDF’s commitment to furthering research, in 2023 we debuted the opportunity for attendees to participate in clinical research.
Once again this year, affected patients and caregivers attending the Conference are invited to join us at the Clinical Research Pavilion, where they can participate in an array of clinical studies conducted by some of the world’s leading researchers. Stay tuned for more details for 2024 studies.
In 2023, more than 75 people participated in the following studies:
- Motor Skills Assessment of mitochondrial disease patients, conducted by researchers at Children’s Hospital of Philadelphia.
- Study of Viral Exposures in children with mitochondrial disease for affected pediatric patients, conducted by the National Institutes of Health.
- Video Assessment for Primary Mitochondrial Myopathy (PMM) and PolG patients, conducted by research firm Emmes, formerly known as Casimir.
Patients and caregivers, you can let us know of your interest in participating in 2024 by clicking here.
Researchers, if you’re interested in bringing your study to the Clinical Research Pavilion, please click here to apply.
Questions? Email [email protected] for more information on the Clinical Research Pavilion.
