Clinical Research Pavilion

Attendees of MitoMed 2025 have the opportunity to participate in in clinical research via the Clinical Research Pavilion, including:

• Detailed Demographic
  Focuses on expanding specific demographics not collected in the general information completed at account creation.
• Diagnostic Intake Form
  Focuses on the diagnostic state of each patient.
• MSeqDR Eligibility
  Determines the patients eligibility to have their raw genomic data entered into the MSeqDR Database.
• Nutrition Support and Diet
  Focuses on the patients nutrition support and any diet they follow.
• Assistive Technology Assessment
  Assess the needs of the patient community with Assistive Technology.
• Health & Development
  Reviews the patients symptoms as a quick snapshot of their overall health.
• Additional Patient IDs
  Identifies unique IDs for patients, such as CRID, GUID, etc.
• Other Names
  Helps to ensure that patients are properly identified when creating GUIDs.

• MM Coast Study
  This is a pilot study with the Children’s Hospital of Philadelphia, to assess the feasibility  and clinical meaning of digital wearable data in comparison to our validated myopathy assessments.

To kickstart your pavilion inclusion, join mitoSHARE today.

Questions? Email [email protected] for more information on the Clinical Research Pavilion.